Path Undetermined...

“My path has not been determined. I shall have more experiences and pass many more milestones.”

I was selfish today. I cared nothing about what else was going on in the world for a whole hour today. i cared only about that hour, and what was going on in my living room. I am back to reality now. i realize your world didnt stop. its ok. i just wanted to let you all know, and be upfront with the fact that my world stopped for an hour today. My little girl is doing such great things.

“Life isn't a matter of milestones but of moments” -Rose F. Kennedy

Today Khloe had PT again. you may remember earlier in the week i was becoming frustrated with not knowing how to deal with khloe's hypertonic moments (where she gets stiff as a bored) i dont know how to 'un-stiffen' her. I was not able to do her PT exercises with her a lot this week because of them. I was getting upset and feeling defeated. after all i should know how to help my child..i hate feeling helpless. so i conjured another list of questions for Amy the PT. When she got here, she hopped right onto the floor and got to work. I was alone today, Chris had a late night at work, so i had 3 little monkeys bouncing off the walls. trying my best to work with Khloe, and still have some control over her older brother and sister (which didnt work at all), i asked all my questions, i learned some more neat tricks to get khloe's little stick legs to bend, and i addressed my concerns with her stiffness. Amy assured me this is all normal for a child with CP. Its all common questions, and continued to show me some great ways to get her to loosen up. although sometimes it will just be beyond what i can do to help her, this seems to work most of the time (today anyway).  I was also told to begin making arrangements for the pediatric neurologist  :( 

“There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.” -Rose F. Kennedy

after all the talking..it was time for Khloe to *SHINE* She received great complements on her sitting :) which melted my little heart. She sat up unassisted for so long we had to stop her to try something else...the little show off!!! Though her standing needs LOTS of work, she stood in front of the couch, alone, for about 20 seconds, while reaching for a cell phone :) and i want ya'll to know, my heart was skipping beats the whole time. i was a wreck! i was so scared her little sticks were going to  give out and  she was going to bang her head or something! i was stuck right up her tush the whole time! but she did it. her legs still have a long way to go. she will still more than likely need braces. she isnt receiving the weight properly. which is because she doesnt keep her feet flat on the ground (either balancing on her toes, or the outsides of her little feet) but that can be corrected with braces!!!  after all that jazz....khloe became more concerned with jumping. she wanted to jump jump jump...and thought this was the greatest thing ever. we would help her stand and hold her hands...and she just jumped everywhere. ( i say jumping..i guess i mean bouncing) she got so silly it became impossible to work with her..so we just had a silly session the rest of the time. she also was showing off her main form of transportation these days, which is rolling. she gets everywhere she needs to by rolling. silly girl. Amy was so thrilled to see her roll, and impressed with her ability to use it to her advantage to get what she needed. shes quicker than the speed of light!!  This is when the greatest part of PT came...Amy told me that most kids with CP dont roll until after 2. and since Khloe is doing this so well, it is probably a great sign that she will have a mild case! obviously she cant guarantee that..and only time will tell...but its a wonderful sign!!! 


So today, Khloe proved, her path is not determined, and that she will continue to meet many many more milestones, and though she may have Cerebral Palsy, Cerebral Palsy DOES NOT have her!!!  For one whole hour, Khloe proved that no one is going to limit her. ever. in that hour, i didnt think of anything else. i didnt care about any other thing in this world, except the beautiful workings of the Lord that were revealed in my living room. it was a wonderful wonderful day.