Monday, March 7, 2011

its been a while..

wow! its been a little while since i have written! trust me, its not because of a lack of events on our end...we have actually been so incredibly busy that i havent even had time to sit and organize my own thoughts! this past week has been very stressful, not because of anything out of the ordinary, but just everyday life was overwhelming for some reason this week.

Wedneday we made another trip to westchester...this time for the pediatric ophthalmologist, Dr.Katz. im not sure im crazy about him. he is good, but he doesnt have a very warming personality, something i feel you NEED when dealing with children. but he was a good doctor. he knew his stuff...and how to help us understand whats going on with Khloe and her little baby blues! Khloe has something called accommodative esotropia. I know what your thinking...ok in engish! basically khloe is farsighted. when she tries to focus on objects her eyes cross inward.  which is why her eyes are not always crossed.  this condition is common in children with muscle tone issues--which seems crazy to me, because if 10,000 kids are diagnosed with CP each year...and most children with CP have tone issues...one would THINK it would be easy to find a pair of glasses for a child Khloe's age! wrong! thankfully a friend told me about these miraflex glasses and sent me all the local places that sell them in our area. i was able to make an appointment for her to get fitted tomorrow.  her lenses had to be specially ordered because they are a high RX and have to be polycarbonate (its a thinner lens so it wont weigh her face down..since her lenses are very thick)! so we got that all squared away. we were unsure if our insurance would cover them, but thankfully they will!! We wont know if Khloe is actually seeing out of her left eye until she is older...and can read a chart..but for now we are treating her left eye as if she were seeing.

i forgot to mention, the doctor dilated her eyes...and she was allergic to the drops! true khloe form, keeping us on our toes! we had to find a place that had benedryl, because the dr didnt have anything in his office, and seemed he could care less that khloe was swelling before our very eyes. he hurried us out and told us to give her allergy meds! thankfully my pediatrician returned our call very quickly ( i love Dr. Tashman..he is the greatest) and instructed us on what to do. Khloe is now fine. but we want to know what was in those drops! especially if its a dye or something--she may need other tests in the future and i dont want to risk that reaction again.

The rest of the week has been spent painting..eh. the whole house. yuck. i am so tired and sore. and lexi has convinced me to paint her room today. its this really light shade of pink, which i would think goes on quite easily, but for some reason, i cant get it to go on even and her dang walls are soaking up the paint...its gonna need a million coats..i can see it now!

other than that...things have been quiet. Khloe tried table food for the first time on saturday. Parmesan crusted chicken and smashed taders... she did ok. she cant figure out how to keep the pieces in her mouth. as soon as she chews they shoot out!!! shes been pulling herself up to stand on everything. she also started to take steps while we hold her hands. this is a big event because it takes a lot of focus and brain power!! go Khloe!! shes been crawling (still not very strong- but she gets everywhere she wants)!!

we go back to see Dr. Roseman (the nuero) on 3/22--im actually looking forward to what he has to say! i love visits with him. hes such a great doctor.

well i suppose i should get back to painting...my boss lexi is breathing down my neck. sheesh..i cant get a break around here!

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